HV partners with the NATIONAL idic 15 SYNDROME ASSOCIATION.
LET'S WORK TOGETHER!
Last Sunday 28 January, a solidarity event was held in Peñaranda de Bracamonte in Salamanca province to collect funds for research on a rare disease called Idic 15 syndrome, which consists in a duplication or alteration of the 15q chromosome, for which there is currently no treatment of any kind.
Children affected by this disease have various kinds of symptoms: Autism Spectrum Disorder (ASD), Obsessive Compulsive Disorder (OCD), Attention Deficit Hyperactivity Disorder(ADHD), a motor disorder that affects balance and coordination, poor muscle tone, intellectual deficit and learning limitations, hypo and hypertonia, epilepsy, etc.
The event featured several performances, the stand-out being the one by the humourist and monologue specialist Alex Clavero, who received a standing ovation from the very large audience that filled the amphitheatre of the Germán Sánchez Ruipérez Foundation.
The star of the show was Maria, who is affected by this disease, the daughter of our colleague Juan Luis, who works in our Arévalo plant in Ávila.
Harinera Vilafranquina was also present, playing its part by contributing to the research on Idic 15 which is being done at the University of Valencia.
We would like to express our concern for all children affected by this rare disease and our support for their families for the continuous efforts they make for their children's integration.
For more information, please go to our website: www.idic15q.com